Doddie Weir Statement

We are deeply saddened to share the news that our founder Doddie Weir has died. Doddie was a force of nature, a great family man, a tremendous rugby player, and loved and respected by all who knew him. Our thoughts are with Kathy, Hamish, Angus and Ben and we know you will join us in sending them our love and best wishes at this time.

Jill Douglas, CEO of My Name'5 Doddie Foundation and close friend of Doddie's, said:

"Doddie enjoyed a full life full of fun and love. And it was this approach to life which shone through in his determination to make a difference and help others when he was diagnosed with motor neuron disease.

"He inspired us every day with his positivity and energy, and was fully committed to the work of the Foundation he launched with his close friends in November 2017. My Name’5 Doddie Foundation continues to shine a light on MND and the need to seek meaningful treatments and one day, a cure for this devastating disease.

"The Foundation has raised significant funds through the amazing efforts of our incredible supporters and has committed £8 million to MND research over this time. We have also given considerable funds to people living with MND and their families to help them live as fulfilled a life as possible.

"With Doddie’s enthusiasm and drive, we have collaborated with other stakeholders within the MND community and firmly established the Foundation as a trusted, influential and well supported charity.

"And our vision of a world free of MND remains at the heart of our strategy. As we look to the future, we will honour Doddie’s name and deliver on his legacy. There is much still to do, and with your support, we will continue our work, remaining true to the values and ambition of our founder."