Impact report

We have published our Impact Report - a chance for you to read about how your continued support has allowed us to invest in MND research and help patients and families living with this devastating disease.

The report covers our finances and activities up to our second anniversary in November 2019 and illustrates how we are all working towards finding meaningful treatments and a cure for MND.

You can read how supporters are continuing to come up with novel and imaginative ways to generate funds and how we are investing in medical research and raising the profile of MND.

You can read the Impact Report here.

More news & stories

View all

Research

23 Sep 2026

Topline announcement of Phase 3 trial results for FUS-MND appear promising

Yesterday, the companies Otsuka and Ionis announced the results of their Phase 3 trial of the genetic therapy, ulefnersen. Ulefnersen targets a rare form of MND…

MND stories Research

14 Sep 2026

R.A.C.E. to Diagnose: New training programme to speed up MND diagnosis

For Andy Vaughton, receiving a motor neuron disease (MND) diagnosis in 2021 finally provided an answer for symptoms he had been struggling with for several years.…

Fundraising MND stories

10 Sep 2026

"I love you, and this is for you": Cammy cycles over 1,000 miles in memory of his Dad

This year, Cammy Jones has taken on two long-distance cycling challenges for My Name’5 Doddie Foundation: Doddie’s Triple Crown, which saw him ride from Melrose…

More news & stories

Topline announcement of Phase 3 trial results for FUS-MND appear promising

R.A.C.E. to Diagnose: New training programme to speed up MND diagnosis

"I love you, and this is for you": Cammy cycles over 1,000 miles in memory of his Dad

Join our Newsletter!