Just launched! Read our new Strategic Plan

Over the last few months our trustees and executive team have been developing a strategic plan for the future of My Name’5 Doddie Foundation. It sets out our values, aims and ambitions with a vision of a world free of motor neuron disease. It includes five key strategic pillars:

Research
Support
Awareness
Sustainability
“Love, fun and hope”.

The eagle-eyed amongst you may have already spotted the refresh across our website, which now incorporates these pillars, and reflects our aims.

We are delighted to share our plan with you - it will help you to understand how we plan to use the funds raised by our amazing supporters. It can be accessed below.

A huge thank you to everyone who has supported us – we’re all #United2EndMND

Click here to read our Strategic Plan

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Research

23 Sep 2026

Topline announcement of Phase 3 trial results for FUS-MND appear promising

Yesterday, the companies Otsuka and Ionis announced the results of their Phase 3 trial of the genetic therapy, ulefnersen. Ulefnersen targets a rare form of MND…

MND stories Research

14 Sep 2026

R.A.C.E. to Diagnose: New training programme to speed up MND diagnosis

For Andy Vaughton, receiving a motor neuron disease (MND) diagnosis in 2021 finally provided an answer for symptoms he had been struggling with for several years.…

Fundraising MND stories

10 Sep 2026

"I love you, and this is for you": Cammy cycles over 1,000 miles in memory of his Dad

This year, Cammy Jones has taken on two long-distance cycling challenges for My Name’5 Doddie Foundation: Doddie’s Triple Crown, which saw him ride from Melrose…

More news & stories

Topline announcement of Phase 3 trial results for FUS-MND appear promising

R.A.C.E. to Diagnose: New training programme to speed up MND diagnosis

"I love you, and this is for you": Cammy cycles over 1,000 miles in memory of his Dad

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