On 22 August, head to Poetry and Hope for Motor Neuron Disease for an unprecedented collaboration of music, poetry, and science that celebrates creativity, hope and life.

This unique event will bring together people living with motor neuron disease (MND), researchers working to find new treatments, and talented poets and musicians. Experience moving poetry with bespoke musical accompaniment, framed by vignettes from cutting-edge research scientists at the Euan MacDonald Centre for Motor Neuron Disease Research, University of Edinburgh. 

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Fundraising
07 Oct 2026

“It had to be something I wasn't sure I could do”: Tom takes on 184 miles for MND

Tom Spearman is preparing to run the entire length of the River Thames in one continuous effort this October, in a bid to raise £50,000 for us after his mum Elisa…
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Research
23 Sep 2026

Topline announcement of Phase 3 trial results for FUS-MND appear promising

Yesterday, the companies Otsuka and Ionis announced the results of their Phase 3 trial of the genetic therapy, ulefnersen. Ulefnersen targets a rare form of MND…
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MND stories Research
14 Sep 2026

R.A.C.E. to Diagnose: New training programme to speed up MND diagnosis

For Andy Vaughton, receiving a motor neuron disease (MND) diagnosis in 2021 finally provided an answer for symptoms he had been struggling with for several years.…
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