We continue to play a vital role in the MND community, collaborating with world-leading researchers, organisations and charities sharing our ambitions, all to ultimately drive progress in finding a cure for MND. This is led by Sean McGrath, our Medical Strategy Lead, who has been with My Name'5 Doddie Foundation since we launched back in 2017.

Our involvement in the MND research world is now established and respected. We are funding many MND research programmes, including two important platform trials that are currently being rolled out. Despite the challenges of Covid-19, real progress is being made in research and we continue to work closely with our scientific advisors in pushing this forward. We have also partnered with the Medicines Discovery Catapult, leading neurologists and industry to improve collaboration and accelerate drug discovery. At the same time we are making inroads into government, aiming to be an authoritative and esteemed voice of the MND community and to influence decision-making. We are helping patients in other ways too, such as developing information sources and providing feedback on research and drug developments. This is only possible through your continued and valued support, thank you.

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Research
23 Sep 2026

Topline announcement of Phase 3 trial results for FUS-MND appear promising

Yesterday, the companies Otsuka and Ionis announced the results of their Phase 3 trial of the genetic therapy, ulefnersen. Ulefnersen targets a rare form of MND…
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MND stories Research
14 Sep 2026

R.A.C.E. to Diagnose: New training programme to speed up MND diagnosis

For Andy Vaughton, receiving a motor neuron disease (MND) diagnosis in 2021 finally provided an answer for symptoms he had been struggling with for several years.…
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Fundraising MND stories
10 Sep 2026

"I love you, and this is for you": Cammy cycles over 1,000 miles in memory of his Dad

This year, Cammy Jones has taken on two long-distance cycling challenges for My Name’5 Doddie Foundation: Doddie’s Triple Crown, which saw him ride from Melrose…
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