It is with profound sadness that we learn of the passing of Rob Burrow, a true friend and fierce advocate in the fight against motor neuron disease. Rob was a remarkable athlete but, more importantly, an extraordinary human being.

Doddie and Rob shared a unique bond, both as legendary rugby players and as warriors against this devastating disease. Rob’s efforts, alongside Kevin Sinfield, have galvanised the MND community and beyond, raising significant funds and awareness.

Rob’s spirit and unwavering positivity in the face of adversity have left an indelible mark. His journey, shared so openly, has brought much-needed attention to MND, and his legacy will inspire future generations.

Our thoughts and deepest condolences go out to Rob’s wife Lindsey, their children Macy, Maya, and Jackson, and all of Rob’s family and friends. The rugby community and the MND community have lost a giant, but the impact of Rob’s work and spirit will endure. We remain committed to a world free of MND, driven by the memory and example of incredible people like Rob, and we will continue to push forward in our quest for a cure.

More news & stories

View all
 picture
Fundraising MND stories
13 Oct 2026

Kathy dedicates Women of the Year honour to the MND community

Kathy Weir's dedication to people affected by motor neuron disease (MND) has been recognised with the Campaigning Champions Award at the 72nd Women of the Year Lunch…
Read more
 picture
Research
13 Oct 2026

Multimillion-pound partnership breaks down barriers in MND research

Motor neuron disease (MND) is one of the most complex challenges in medical research. While excellent work is taking place across the globe, no single researcher…
Read more
 picture
Research
12 Oct 2026

EXPERTS-ALS rules out Ropinirole as a potential treatment for MND

The latest results from the EXPERTS-ALS clinical trial have shown that Ropinirole is unlikely to be an effective treatment for motor neuron disease (MND), and the…
Read more
Bell icon

Join our Newsletter!

By subscribing, you confirm that you agree with our terms and conditions.