United to End MND update

Ahead of today's (26 April) coalition meeting with Gillian Keegan MP, a group of scientists representing the leading MND research centres have written a letter to the Minister outlining the benefits of a single peer-reviewed application for the delivery of the £50m government investment.

A similar letter was also written to the Minister for Science, Research and Innovation, George Freeman MP, with copies sent to Sajid Javid MP and Kwasi Kwarteng MP.

My Name'5 Doddie Foundation's Medical Strategy Lead, Sean McGrath, will be attending the meeting and we hope to share the outcomes of it soon.

The letter can be viewed here.

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Topline announcement of Phase 3 trial results for FUS-MND appear promising

Yesterday, the companies Otsuka and Ionis announced the results of their Phase 3 trial of the genetic therapy, ulefnersen. Ulefnersen targets a rare form of MND…

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R.A.C.E. to Diagnose: New training programme to speed up MND diagnosis

For Andy Vaughton, receiving a motor neuron disease (MND) diagnosis in 2021 finally provided an answer for symptoms he had been struggling with for several years.…

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"I love you, and this is for you": Cammy cycles over 1,000 miles in memory of his Dad

This year, Cammy Jones has taken on two long-distance cycling challenges for My Name’5 Doddie Foundation: Doddie’s Triple Crown, which saw him ride from Melrose…

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Topline announcement of Phase 3 trial results for FUS-MND appear promising

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