People are at the heart of everything we do at My Name’5 Doddie Foundation. Whether you’re living with MND, caring for someone who is, or joining one of our fundraising events, your story has the power to define the narrative of MND.
"My mission in my MND journey is to show everybody that the disease won’t stop me from doing what I love – nor should it anybody – I just have to do it differently. I can define the narrative."
Luke, a GP living with MND, took on an epic 84-mile trek across England to raise money for MND research. His incredible journey shows us what it's like to live with MND on your own terms.
"This disease doesn’t just happen to one person. It happens to whole families. You’re no longer just a daughter, or a husband – you’re a carer."
Tara lost her mum Claire to MND, and knows first-hand the devastating effect the disease has on families. A strong supporter of Doddie Aid, Tara also advocates for greater awareness and understanding of MND in care settings.
"People call me inspirational, but I didn’t choose this path, it found me. When I was diagnosed I didn’t know if I’d sink or swim, somehow, I found myself floating."
Nigel is one of the world’s leading disabled snooker players. He's on a mission to show others that you can “still live well in the time you have."
"Even when your voice fails, you still matter. You’re still heard."
Yvonne has been living with MND since 2020. During this time, the disease has altered her life completely – taking away most of her mobility, her physical strength, and her voice. Discover how artist Sara Pope captured Yvonne’s essence and personality in her project Portrait of a Voice and how AI technology has helped Yvonne reclaim her voice.
To mark this year’s Global MND Awareness Day (21 June), we’re proud to share Ben Lighting’s story - a powerful and honest account of living with motor neuron disease, and focusing on what matters most.
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