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News & stories

Stay up to date with the latest news, research updates, and stories from across our community. Hear about the progress being made and what it means for those affected by MND.

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MND stories Research
14 Sep 2026

R.A.C.E. to Diagnose: New training programme to speed up MND diagnosis

For Andy Vaughton, receiving a motor neuron disease (MND) diagnosis in 2021 finally provided an answer for symptoms he had been struggling with for several years.…
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Research
15 Oct 2026

Early career researcher opportunities: Join our research committees

We are inviting early career researchers (ECRs) to join either our Discovery Network Advisory Board or our Translational Research Review Committee. You will join…
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Fundraising MND stories
13 Oct 2026

Kathy dedicates Women of the Year honour to the MND community

Kathy Weir's dedication to people affected by motor neuron disease (MND) has been recognised with the Campaigning Champions Award at the 72nd Women of the Year Lunch…
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Research
13 Oct 2026

Multimillion-pound partnership breaks down barriers in MND research

Motor neuron disease (MND) is one of the most complex challenges in medical research. While excellent work is taking place across the globe, no single researcher…
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Research
12 Oct 2026

EXPERTS-ALS rules out Ropinirole as a potential treatment for MND

The latest results from the EXPERTS-ALS clinical trial have shown that Ropinirole is unlikely to be an effective treatment for motor neuron disease (MND), and the…
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Fundraising
07 Oct 2026

“It had to be something I wasn't sure I could do”: Tom takes on 184 miles for MND

Tom Spearman is preparing to run the entire length of the River Thames in one continuous effort this October, in a bid to raise £50,000 for us after his mum Elisa…
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Research
23 Sep 2026

Topline announcement of Phase 3 trial results for FUS-MND appear promising

Yesterday, the companies Otsuka and Ionis announced the results of their Phase 3 trial of the genetic therapy, ulefnersen. Ulefnersen targets a rare form of MND…
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