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News & stories

Stay up to date with the latest news, research updates, and stories from across our community. Hear about the progress being made and what it means for those affected by MND.

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MND stories Research
14 Sep 2026

R.A.C.E. to Diagnose: New training programme to speed up MND diagnosis

For Andy Vaughton, receiving a motor neuron disease (MND) diagnosis in 2021 finally provided an answer for symptoms he had been struggling with for several years.…
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Research
23 Sep 2026

Topline announcement of Phase 3 trial results for FUS-MND appear promising

Yesterday, the companies Otsuka and Ionis announced the results of their Phase 3 trial of the genetic therapy, ulefnersen. Ulefnersen targets a rare form of MND…
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Fundraising MND stories
10 Sep 2026

"I love you, and this is for you": Cammy cycles over 1,000 miles in memory of his Dad

This year, Cammy Jones has taken on two long-distance cycling challenges for My Name’5 Doddie Foundation: Doddie’s Triple Crown, which saw him ride from Melrose…
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Fundraising
04 Sep 2026

"This can't be a flash in the pan": Why our community matters more than ever. From Paul Thompson, our Director of Fundraising and Engagement

Hear from Paul, our Director of Fundraising and Engagement, as he reflects on our incredible community and what we've achieved together.

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Fundraising MND stories
02 Sep 2026

“I do what I can and don’t dwell on what I can’t”: Nick’s story

Nick Apperley, who is living with motor neuron disease (MND), is determined not to let his diagnosis define him or prevent him from doing what he can, whilst continuing…
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Fundraising MND stories
25 Aug 2026

Steven, an artist living with MND, puts on exhibition to support charities

Glasgow artist Steven Hart, who is living with motor neuron disease (MND), is gearing up to present a major exhibition of his work next week, whilst raising funds…
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Fundraising MND stories
10 Aug 2026

“I finished what Dad started”: Paul Choat completes all 282 Munros in memory of his Father

Last month, Paul Choat stood at the summit of Perthshire’s Schiehallion, and bagged his final Munro. He was joined by family and friends, including his six-year-old…
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