The Foundation set up by Doddie Weir has donated £100,000 to support the efforts of the Motor Neurone Disease Association amd MND Scotland during the current coronavirus pandemic.
The money is on top of the £100,000 the My Name’5 Doddie Foundation has already contributed this year to the Motor Neurone Association’s grant scheme and the £50,000 pledged to MND Scotland.
Doddie has been very vocal in his campaigning and fundraising for people with motor neuron disease (MND) since his diagnosis three years ago. With people with MND in the high risk category for coronavirus, he has now stepped up his support to ensure people with MND have the care they need in the current crisis.
Doddie said: “Having MND puts people in the high risk category of coronavirus because our respiratory systems are already compromised. That means right now is a very worrying time for us. I am determined to do as much as I can to help alleviate some of those concerns. The money will be used by the MND Association in England, Wales and Northern Ireland and by MND Scotland to shore up the support they are offering people with MND at this time.”
Sally Light is the chief executive of the MND Association. She said: “We are working really hard to ensure our vital work supporting people with MND continues during the current crisis while also seeing a dramatic fall in our income following the postponement of so many key events in our fundraising calender. We are so grateful to Doddie for this donation which will enable us to continue and step up our support of people living with MND at this very worrying time.”
Craig Stockton, chief executive of MND Scotland, said: “People with MND are among the most vulnerable in our society and during this very uncertain time, they need us more than ever. We are working tirelessly to develop and change the ways in which we support people affected by MND in Scotland, and this boost from Doddie’s foundation will help us stay connected to families when they need us most.”
MND affects the nerves in the brain and spinal cord that tell muscles what to do. It is a fatal, rapidly progressing disease that takes away a person’s ability to move, eat, speak and ultimately to breathe.
The Foundation has, to date, contributed £750,000 to families living with MND.
About the MND Association:
Please note that style wise motor neurone disease is lower case and then abbreviated to MND. The Motor Neurone Disease Association can be shortened to the MND Association, or the Association but never the MNDA.
The MND Association was founded in 1979 by a group of volunteers with experience of living with or caring for someone with MND. We are the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.
We improve care and support for people with MND, their families and carers.
We fund and promote research that leads to new understanding and treatments, and brings us closer to a cure for MND.
We campaign and raise awareness so the needs of people with MND and everyone who cares for them are recognised and addressed by wider society.
About motor neurone disease (MND):
- MND is a fatal, rapidly progressing disease that affects the brain and spinal cord.
- It attacks the nerves that control movement so muscles no longer work. MND does not usually affect the senses such as sight, sound, feeling etc.
- It can leave people locked in a failing body, unable to move, talk and eventually breathe.
- Over 80% of people with MND will have communication difficulties, including for some, a complete loss of voice.
- It affects people from all communities.
- Around 35% of people with MND experience mild cognitive change, in other words, changes in thinking and behaviour. A further 15% of people show signs of frontotemporal dementia which results in more pronounced behavioural change.
- It kills a third of people within a year and more than half within two years of diagnosis.
- A person’s lifetime risk of developing MND is around 1 in 300.
- Six people per day are diagnosed with MND in the UK.
- It affects up to 5,000 adults in the UK at any one time.
- It kills six people per day in the UK, this is just under 2,200 per year
- It has no cure.
About My Name’5 Doddie Foundation
My Name’5 Doddie Foundation received full charitable status in October 2017 with the stated aims of raising funds to aid research into the causes of Motor Neurone Disease and investigate potential cures. In addition, it is committed to making grants to individuals suffering from MND, to enable them to live as fulfilled a life as possible.