As the next step in the United To End MND campaign, we've launched a petition calling for more investment in targeted MND research and a virtual centre of excellence for MND research, leading us towards treatments and cures.
The petition – in the name of Scottish rugby legend Doddie Weir - is backed by a coalition of people with MND, researchers, clinicians and charities.
Can you show your support by adding your name?
Research into the causes and potential treatments for MND has progressed, with current trials offering real promise. But this progress is largely dependent on sufficient levels of investment.
And research costs money. Currently funding for MND research from charities outstrips that from government. Without government support this vital progress is in danger of halting.
The United To End MND campaign has already had a positive reception, with Doddie Weir meeting Secretary of State for Health & Social Care Matt Hancock last year. We are looking forward to meeting ministers later in Spring to go through our proposals in detail.
Signing the petition is a chance for us to show public support for MND research and help make our case as strong as possible.
What is needed?
£50 million from the Government over five years would fund a virtual institute for MND Research, providing the infrastructure needed for accelerating treatments for MND. It will bring together advances in both clinical and core science research.
The institute will make a real difference to MND research by:
- focussing on world-leading drug discovery and development
- developing a sustainable MND trials platform
- implementing a rigorous clinical research programme.
For more information on the case for the institute please start with our briefing. We also have a further paper aimed at a research audience.
Who is involved?
Only by working together will we find a cure and treatments to give hope to people with MND.
That’s why people with MND, the MND Association, MND Scotland, the My Name’5 Doddie Foundation, researchers and clinicians are collaborating on this call for Government action. Some pharmaceutical companies have already expressed their support too.
Spread the word
Can you help us share the petition?
The petition page is designed to help you share the petition by e-mail, Facebook or Twitter.
If you have any questions or ideas for the campaign, get in touch.