Doddie Weir OBE is one of rugby’s most recognisable personalities. He earned 61 caps for Scotland during a successful playing career, represented the British and Irish Lions on their successful tour to South Africa in 1997, and won championships with his two club sides, Melrose and Newcastle Falcons.
A talented, committed and athletic lock forward, Doddie is now facing his biggest challenge. In June 2017 the Scot revealed he was suffering from Motor Neuron Disease. From the outset, Doddie has been driven to help fellow sufferers and seek ways to further research into this, as yet, incurable disease.
In November 2017, Doddie and his trustees launched the registered charity, My Name’5 Doddie Foundation. Our vision is simple: A World Free of MND.
The number “5” is a special number for the Foundation. It features in the Foundation’s name and is a reference to Doddie’s playing number for his clubs, Melrose and Newcastle Falcons, and the jersey he wore when he earned his 61 caps for Scotland.
The Foundation's Strategic Plan has five main pillars:
We have published our Impact Report – A chance for you to read about how your continued support has allowed us to invest in MND research and help patients and families living with this devastating disease.Download our Impact Report
The Foundation is committed to helping improve the lives of those affected by Motor Neuron Disease. We help to fund grants, giving considerable sums to our friends at MND Association and MND Scotland to administer to individuals and families living with MND.
We work in partnership with existing frontline care providers to ensure the holistic needs of patients and their families are understood and met. We do this through supporting our friends at MND Scotland and MND Association who conduct the due diligence and manage these grants on our behalf. To find out more about the grants and to apply, head to either MND Scotland or MND Association’s grant pages.
We initiate and encourage research to better understand the information and support needs of MND patients and their families.
We engage with patients through the provision of information about latest developments and the opportunity to shape research priorities clinical trials and rapidly translating results into clinical practice.
It is our aim to be a strong, evidence-based, and trusted voice for MND patients, their families, and the wider community through education, awareness-raising, campaigning, and advocacy activities.
How we’ll fulfill our aim:
We are focussed on building a great and sustainable business so it can continue to deliver for the MND community and those who embrace its core values.
We will do this through:
Jill Douglas is CEO of My Name’5 Doddie Foundation and manages the day to day activity of the charity, working closely with trustees. Jill is also a respected sports broadcaster.
Nicola Roseman is the Foundation’s CFO. She is ACCA and CIPD qualified with extensive global experience. Nicola is responsible for all matters financial relating to the Foundation as well as liaising with Auditors, Bankers, Investment Managers and HMRC.
Medical Strategy Lead
Sean McGrath is the Foundation’s Medical Strategy Lead. He is a management consultant with a background in healthcare and general management. Sean has a wealth of knowledge and experience in the cancer and rare diseases environment, built over almost thirty years.
Digital Marketing Manager
Alex is the Foundation’s Digital Marketing Manager. He handles digital communication with our brilliant supporters and partners via our social media, mailing list and website. Alex has a background in PR, social media and e-commerce.
Research and Grants Officer
Olivia is the Foundation’s Research and Grants Officer. She manages applications for funding, peer review and monitors the progress of our research projects. Olivia is knowledgeable about medical research having gained her PhD in pharmacology and has a wealth of experience in clinical trial coordination and medical communications.
Community Fundraising Manager
Rachel is the Foundation's Community Fundraising Manager. She looks after all the wonderful supporters and fundraisers who get in touch to help raise vital awareness and funds towards fighting MND. Rachel has previous experience working with national charities and delivering fundraising and knowledge sharing events across the UK.
Director of Income Generation
Paul Thompson is the Foundation’s Director of Income Generation. He is responsible for delivering the income needed to continue and grow our research and support programmes. Paul has twenty years’ experience in a range of fundraising roles at National UK health charities.
Scott is Scotland’s most capped rugby centre three quarter with 65 caps. He played in 51 Internationals with his brother Gavin and they are the only brothers to have played on two British Lions Tours to Australia in 1989 and to New Zealand in 1993. In 2015 he commentated at his 5th Rugby World Cup with ITV having played in the first three RWC tournaments in 1987, 1991 & 1995. Scott continues to commentate for BBC Alba, Sky Sports and with ITV during the Six Nations.. He is married to Jenny. They have two children, Corey and Kerry-Anne. When his is not commentating on rugby he likes running, golf and bog snorkeling!
John Jeffrey played 40 times for Scotland as an industrious and robust flanker in an international career that spanned eight seasons from 1984 until 1991. In that time, the Kelso farmer scored 11 tries for his country and was part of the Grand Slam-winning team of 1990 as well as the 1989 British and Irish Lions squad. Since retiring from playing the game, Jeffrey has remained involved in the game, first as a coach and radio commentator and then in administration where he has held committee positions at club, country and latterly at World Rugby level. He is currently chairman of the Rugby Committee as well as chairman of the Laws Review Group and is also a representative of the Scottish Rugby Union on World Rugby Council. John continues to run the family farm near Kelso where he lives with his wife and two daughters and regularly makes it down to Poynder Park to support his old club.
Kathy and Doddie were married in 1997 after he popped the question when they stopped at the Carter Bar, the Borders crossing, after a night out. They have three sons, Hamish, Angus and Ben, and live in the Borders on their farm between Lauder and Melrose. Kathy manages to balance looking after the livestock, her horses, the boys, working with an outside catering company while trying to keep Doddie on the straight and narrow! Kathy hails from Bellingham near Hexham where her family has built a successful drainage company…and while Doddie may say it was the lure of professional rugby that led to his move into North Northumberland, we know better!
Stewart Weir is a media and PR consultant, who as an award-winning journalist, was a staff writer with the Evening Times, former chief sportswriter with the Scottish Mirror, and formerly head of sport for the Herald & Times group. A trustee of the Foundation from the outset, in May 2018, Stewart embarked on co-writing Doddie’s best-selling autobiography ‘My Name’5 Doddie,’ completing the book, from the first interview to release, in just five months. Asked at a book festival how difficult writing the book with Doddie was, Stewart replied; “I’d place it just behind bomb disposal and juggling chainsaws.”
Annabel trained at the Royal Free Hospital and has enjoyed a variety of medical roles including director level appointments in primary and secondary care as well as clinical governance. As a palliative care specialist and previously as a GP, she has looked after many people with MND, ensuring they receive high quality person-centred care and was involved in the successful fundraising for the purpose-built palliative care unit in the Borders. Annabel also is Chair of the Scottish Partnership for Palliative Care. Her sport was rowing and she still sits on the British Rowing Medical Advisory Panel and supported the GB Rowing Team in training and competition prior to the Beijing Olympics. She lives in the Scottish Borders with her husband Julian and family.
Sheela is a Trustee at the Foundation. She is a rare disease strategic advisor and is passionate about to securing high quality care outcomes for patients with rare diseases She has extensive experience in understanding the issues that stakeholders face when developing and bringing new treatments to patients trying to secure access for medicines. Sheela sits on the board of the World Orphan Drug Congress and has participated in several European projects in rare diseases. She is also chair elect for the ISPOR Rare Disease Special Interest Group. Sheela has co-authored several papers that discuss HTA methods for assessing value of orphan medicines and presented at many conferences on the subject.
Sheela has a passion for partnership working and believes that collaboration is the key to delivering high quality outcomes for all.
Matt has been involved in clinical research for over 20 years in industry, academia and the NHS, including time at AstraZeneca, Bradford Teaching Hospitals NHS Trust, the National Cancer Research Network and as an Exec Director of the NIHR Clinical Research Network. He is currently General Manager, Oncology at Panthera Biopartners. He lives in North Yorkshire, enjoys running in the countryside with his English Pointer and coaches Ripon Rugby Club U15 girls.
Stuart is a Chartered Accountant who spent more than 20 years in investment management. He has served on the boards of several companies and charities. Stuart played schoolboy rugby with Doddie and they toured New Zealand together with the Scottish Schools team in 1988.