Kirsty Macquarie joined the Foundation as a volunteer in June 2024, after the death of her husband from MND in 2021. Since then, Kirsty has thrown herself into as much as possible, offering a regular afternoon to support the team, helping at a volunteer office admin day, as well as supporting at Edinburgh Whisky Festival, the Doddie Duck Race at Dalkeith Country Park, and the Melrose Sevens. Kirsty is also due to join us at the Edinburgh Art Fair later this year, and is looking to join our volunteer speaker programme.

I became a volunteer for the Foundation to give something back to the MND community for all the support I received when my husband was diagnosed.

“I’ve enjoyed attending events to support selling the merchandise and I’m also running the Cardiff half-marathon for the Foundation in October. My highlight so far has been the opportunity to attend Parliament.”

To anyone thinking about becoming a volunteer Kirsty says: “Volunteering for My Name’5 Doddie Foundation is fun, fulfilling and rewarding. Just go for it! I was unsure to start with, as it was out of my comfort zone. I’m quite shy but everyone made me feel so welcome. The team are so reassuring and easy to talk to.”

To find out more about volunteering with My Name'5 Doddie Foundation, please click here. 

More news & stories

View all
 picture
Research
23 Sep 2026

Topline announcement of Phase 3 trial results for FUS-MND appear promising

Yesterday, the companies Otsuka and Ionis announced the results of their Phase 3 trial of the genetic therapy, ulefnersen. Ulefnersen targets a rare form of MND…
Read more
 picture
MND stories Research
14 Sep 2026

R.A.C.E. to Diagnose: New training programme to speed up MND diagnosis

For Andy Vaughton, receiving a motor neuron disease (MND) diagnosis in 2021 finally provided an answer for symptoms he had been struggling with for several years.…
Read more
 picture
Fundraising MND stories
10 Sep 2026

"I love you, and this is for you": Cammy cycles over 1,000 miles in memory of his Dad

This year, Cammy Jones has taken on two long-distance cycling challenges for My Name’5 Doddie Foundation: Doddie’s Triple Crown, which saw him ride from Melrose…
Read more
Bell icon

Join our Newsletter!

By subscribing, you confirm that you agree with our terms and conditions.