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Our vision: A world free of MND

Motor neuron disease is brutal and has no cure. We fund the smartest, most efficient research. Because when you’re living with MND, time matters.

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Who we are

We are My Name’5 Doddie Foundation. Established by Doddie Weir OBE, we have a clear vision: a world free of MND.

About us
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Where your money goes

Your donations power our mission. They allow us to invest relentlessly in the cutting-edge science that is catalysing breakthroughs in MND research.

Our strategy

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Whether you’ve got five months to train or a fiver to donate, your efforts are helping us change the future for everyone affected by MND.

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Real stories from our community

No matter how you’re affected by MND, everything we do starts with people like you. That’s why we’re proud to be a voice for everyone affected by this disease. Because each story has the power to raise awareness and define the narrative on MND.

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Latest News

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Research
23 Sep 2026

Topline announcement of Phase 3 trial results for FUS-MND appear promising

Yesterday, the companies Otsuka and Ionis announced the results of their Phase 3 trial of the genetic therapy, ulefnersen. Ulefnersen targets a rare form of MND…
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MND stories Research
14 Sep 2026

R.A.C.E. to Diagnose: New training programme to speed up MND diagnosis

For Andy Vaughton, receiving a motor neuron disease (MND) diagnosis in 2021 finally provided an answer for symptoms he had been struggling with for several years.…
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Fundraising MND stories
10 Sep 2026

"I love you, and this is for you": Cammy cycles over 1,000 miles in memory of his Dad

This year, Cammy Jones has taken on two long-distance cycling challenges for My Name’5 Doddie Foundation: Doddie’s Triple Crown, which saw him ride from Melrose…
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